Person with TBI

The myTBI modules provide a roadmap of the expected recovery journey following a traumatic brain injury (TBI). These modules are written for people for a TBI, but they may also be helpful for family members/caregivers and healthcare professionals.

The person with a TBI may benefit from having a family member, friend or healthcare worker to help them understand each module depending on their level of cognition.

There are 13 modules in total, beginning with information in the Acute stage (0-3 months after injury), followed by Post-Acute stage (between 3-12 months after injury) and Chronic stage (more than 12 between after injury).

Helpful Resources for People with TBI

Helpful Resources for Families and Loved Ones

Helpful Resources for Professional Staff

People involved

Dr Lakkhina Troeung Dr Cathryn McKenzie
Thila Raja Prof Colin MacLeod
Dr Georgina Mann Dr Angelita Martini
Janet Wagland  

Acknowledgement

The myTBI study was funded by the Neurotrauma Research Program. We would like to thank the people with TBI, family members, healthcare staff, and expert panel members who participated in creating the myTBI website.

Research partners

About myTBI

The myTBI online platform was created by researchers from Brightwater Research Centre and the University of Western Australia. The study is funded by a Neurotrauma Research Programa Grant – Insurance Commission of Western Australia Research Funding Scheme Year 2: 2022-2023.

The myTBI platform consists of psychoeducation modules to support people with a TBI during their recovery journey, from initial diagnosis through to years post-injury. Psychoeducation is a therapeutic approach which aims to provide systematic and structured information on an illness and its treatment and prognosis to support patients and family members to understand and cope with recovery.

The myTBI modules focus on the psychosocial aspects of recovery from a TBI. Psychosocial functioning is a broad multidimensional construct which encompasses the cognitive, emotional, behavioural, interpersonal and psychological aspects of a person’s life. This includes how well a person functions in their occupation, family and social relationships, as well as their mental health, sense of self and quality of life.

The myTBI modules were developed based on interviews and surveys with people with TBI, their family members and caregivers, and rehabilitation staff. A multidisciplinary expert panel then participated in a consensus process to select the final modules which appear on this website.